Living with Autoimmune Disease: Part 2

Living Your Best Life: Reducing Stress – Relieving Symptoms

photo of woman holding her head
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Having been diagnosed with an autoimmune disease, or any other chronic disease, if you are like me, the next step is to figure out how to live your best life.  Our quality of life is rarely thought about until something changes that quality.  For me, the substantial change was not having the energy to do all I wanted and to find a way to deal with the relentless, generalized pain (feeling like I am coming down with the flu). 

You can take one of the numerous routes available to help you live the life you want, feel better, and be happy despite autoimmune disease(s), or other chronic illnesses.  There is no ‘one size fits all’ when it comes to our health and achieving our goals.  In this article I am touching on one possibility: HeartMath (TM).

HeartMath (TM)

I don’t remember how I discovered HeartMath (TM), but I am grateful I did. I have been practicing HeartMath (TM)  for several years and have found it beneficial to my physical, emotional, and mental well-being.

Being diagnosed with an autoimmune disease was not the reason I started practicing HeartMath techniques.  I became a Certified HeartMath Mentor and Coach to help myself and others enhance their health and relieve stress.  I have gotten valuable information and recently decided that sharing this information with those who have autoimmune diseases is long overdue.  HeartMath helps us manage stress. Remember, stress can worsen the symptoms of autoimmune diseases.

What is Stress?

We all have stress; it is something we experience every day.  We have big stressors i.e. illness, death, debt, and divorce that lead to negative emotions.  But happy, positive events can also be stressful i.e. weddings, birthday parties, graduation, a new job, or other celebrations.   The body doesn’t differentiate between big stress or little stress, or between happy stress, or troublesome stress.  We experience stress many times during the day, and it all begins with a flow of 1400 biochemical events in our body.  We don’t notice most of these because we get used to them e.g. traffic on the way to work, that one annoying person in the office, or the kids being kids.  For me, technology problems often start me on a path of frustration (an indicator of stress), which often leads to anger (another indicator of stress).  Stress takes a toll on your immune system, so take time to learn how to manage your stress – at least most of the time.  Even if you don’t think you have much stress in your life, chances are you can decrease the negative effects on your body by practicing some simple techniques to put you in control.  Unchecked stress will age you prematurely, your cognitive function will become impaired, your energy will be drained (I don’t need anything that drains my energy), and you will become less effective, and your clarity of thought will be impaired (https://www.heartmath.com/blog/health-and-wellness/how-stress-affects-the-body/

Identifying our stressors can be difficult because we have learned to just live with them. If you need additional work to uncover your stressors check out HeartMath’s Depletion to Renewal Grid(R) which is a good way to determine where your stress level is at any given time.  For starters, I suggest you plot your stress one or more times a day for about a week – but longer if you would like.  The goal is to be as close to centre as possible. However, remember that our lives are constantly changing and we want to embrace all the changes and ups and downs. We want to know that we can handle the tough parts as well as the up times.

If you are someone who meditates keep it up.  The HeartMath(TM) experience is a bit different and you might want to do both. You don’t need to be on your own or in a quiet place to do Heart-Focused-Breathing(R). Take time to find ways to relax and restore your energy.

Self-Care

a woman with peebles on her back lying on white bed
Photo by Tima Miroshnichenko on Pexels.com

Self-care is not selfish; it is a must for health and well-being.  If you are like me, you ignored self-care for many years by working hard, taking on more, and helping others, because you thought that was what you were supposed to do, or maybe a bit of FOMO (fear of missing out).  But by not taking care of yourself you eventually wear out and are forced to slow down.  That is something our autoimmune diseases have done to us – forced us to slow down. I was stubborn and didn’t slow down enough, or take the best care of myself until I developed cancer. By the time cancer set in I didn’t have a choice, I couldn’t do much, let alone too much.

Self-care involves nutrition, activity, sleep, managing your stress, having a support system, and embracing your spirituality.  Self-care means looking after all of you.  We cannot separate our physical, mental, emotional, and spiritual health – what happens to one affects all the others.  This might sound overwhelming.  You do not have to make big changes all at once.  Start slow, with small changes, and keep going.  You want to do what you need and be successful.  With each success, you can celebrate and take the next step.  Don’t let yourself become overwhelmed.  Overwhelm can come on unexpectedly as we try to make changes to improve our health. 

Make a point of taking some time for you every day.  A few minutes of breathwork with the Quick Coherence Technique and Heart-Focused-Breathing can be good place to start. But if that doesn’t work for you find something that does work for you.

I found this “Self-Care Menu”. Give a few of these things a try during the week or the weekend. The suggestions are good for anyone, any time.

What’s Next

Watch for more blogs about other things you can try to live a better life, despite autoimmune disease.  One step at a time, one day at a time.  You deserve to be well and to have a beautiful life.   Check out some of the Resources on my website for more information and options for improving your health.

You are in control!

woman surrounded by sunflowers
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Our Heart: Pump, Emotions, Stress, Energy

Our Heart: Pump, Emotions, Stress, Energy

Just like our brain, we all have a heart. We know our heart acts like a pump to circulate blood throughout our body. We know that we can have heart attacks and other cardiac diseases.

Something many do not know is that the heart and brain communicate and that the heart communicates with the brain more than the brain communicates with the heart.

When you are feeling stressed, your heart is involved along with your brain. Our emotions influence our hearts and brains. The heart is an electrical system. This shouldn’t surprise you because the ECG (electrocardiograph) that traces our heart rhythm is tracing the electrical rhythm of our heart. The functioning of the brain can also be examined using an EEG (electroencephalograph), which measures the electrical functioning of the brain. Muscles are also measured electrically. We are made up of electrical energy.

Enough about the electricity for now. Next, a bit of information about how our heart and brain work together when we are experiencing stress.

What is stress and how do you know if you are experiencing stress? Definition of stress:

In a medical or biological context stress is a physical, mental, or emotional factor that causes bodily or mental tension. Stresses can be external (from the environment, psychological, or social situations) or internal (illness, or from a medical procedure). Stress can initiate the ‘fight or flight’ response, a complex reaction of neurological and endocrinologic systems.

Definition of stress:

Stress affects many areas of our body. Remember too, that all areas of the body are connected. We cannot separate our mind and mental health from our body and physical health. Our emotions affect our brain, mind, and mental health which in turn affect our body. Stress can lead to physical illness and physical illness can lead to stress. A bit of a vicious circle.

Researchers have discovered that our emotions are a result of our hearts and brains working together. Neurocardiology (a specialty of how the brain and heart interact) research has determined that the heart is a sensory organ. The heart can learn, remember, and make independent functional decisions that do not involve the cerebral cortex. (2003. McCraty, R. energetic-heart.pdf  Institute of HeartMath.)

Our emotions drain our energy. Think about it, when you have had a disagreement with someone, you will often feel tired and make poor decisions. Afterward, we are apt to say to ourselves (maybe even to others) ‘what was I thinking?

“It’s not stress that kills us, it is our reaction to it.”
— Hans Selye

https://www.heart.org/en/healthy-living/healthy-lifestyle/stress-management/stress-and-heart-health

The HeartMath™ System (programs, techniques) includes methods of mental and emotional self-regulation and energy management techniques that lead to a restructure of neural (nervous system) circuits. The techniques assist in the alignment of our mental, emotional, and physical systems. All the techniques affect several areas of the brain: amygdala, hippocampus, prefrontal cortex, and thalamus and improve the synchronization of the heart-brain, hormonal balance, the autonomic nervous system, and vagal pathways. Breathing is a vital component of the HeartMath™ systems. But HeartMath™ is much more than breathing. Remember, our heart and head are communicating with each other.

One of the goals of drelaineleadership.coach and HeartMath skills is to guide you to increased internal awareness. Everyone deserves to have a beautiful life that includes self-awareness and limited stress. You can be in control of your emotional responses.

Stress often leads to us adopting poor coping behaviours that can increase our risk of heart disease and stroke. Some poor coping behaviours include smoking, alcohol, drugs, overeating, absence of physical activity, unhealthy diet. Being overweight, and not taking your prescribed medications as per your doctor’s instructions are also symptoms of stress.

Stress can show up in your body as a headache, back strain, painfully tight shoulder muscles, and stomach pain. Other things that stress can do to you include zapping your energy, create sleep problems, and adding to crankiness, forgetfulness, and not being as in control of yourself as you would like. A chain reaction begins:

Stress > release of adrenalin and cortisol > increased heart rate, breathing rate, and blood pressure

You are prepared to fight or flee even though there is no physical danger, no lions, or tigers, or bears.

There is a large body of information and research about stress and ways to manage our emotions. I will continue to share information about stress, emotions, the heart-brain connection and how to take control of your emotional reactions in future blogs. But just a little bit at a time.

Are Your Decisions Based on Fear?

When that bear is after me, I hope I can run faster than you can. I also hope that my fear has kicked in enough that I can actually run. I used to love running, but as with many of us old folk – the knees are gone.

If some dude or dudette breaks into my house while I am home, I hope I have enough fear to either hide or run. Fear can be good. The adrenalin gets you going, hopefully, to someplace safe. Fear today is different from the fear in the caveman days (I think there were cavewomen too, but we don’t seem to talk about them). We don’t have to run from the lion, tiger, bear, or any of those aggressive animals who look on us as prey. Today our fear comes from the political climate, the pandemic, racial issues and inequality, women’s inequality, the environment, and what we are doing about it – or not doing. Some still fear not being able to feed or house their families – wow – how long has this been going on??

Every day we are apt to experience fear when we drive, when we are walking, when someone we do not know approaches us, or if someone is not wearing a mask. How do you react to these fears? In most cases, you know your heart and respiratory rates increase. The increased heart and respiratory rate can also happen when we talk about politics and pandemics (starting to be hard to separate the two).

We are facing numerous fears with the ongoing pandemic. Mask versus non-mask, vaccine versus anti-vaccer, conspiracy versus non-conspiracy, and there might be other divides of which I am not aware. Why are these divides present – fear.  Fear is often the doing of politicians and the media.

There are numerous other things occurring causing us fear. No income, no school or only home-school, and you can’t work from home, not enough money to feed the family, pay the bills, and keep a roof over your head have become too common.

Our mental health is being stretched like it has not been in the lives of many of us. The Polio scare in the mid-50s, The Bay of Pigs, and the Cuban Missile Crisis in the early to mid-’60s when I was still fairly young, definitely scared us. By the time the Missile Crisis came along, I was old enough to read the paper and be frightened along with the adults. I didn’t understand everything, but I knew there was a possibility that we might be gone and I might not be with my mom when it happened. I was scared, really scared.

I am not scared now. I am fortunate and old enough to be able to live on my retirement pension. I will continue to look after my health, wear my mask (heck my immune system has been crap since long before the pandemic), and I have my two jabs. I wasn’t going out before the pandemic hit because I was undergoing chemo – I just haven’t changed what I was doing then.

That only gives us a bit of understanding of the effects of fear. When the pandemic has run its course there will be other fears. What else causes us to be fearful and how does fear influence our decisions?

We have been subjected to fear-causing news reports, health reports, and general pandemic discussions for a bit over 18-months. What an incredible amount of stress we have been put through, and that stress affects our decisions. Why? Because the fear creates stress which then influences our decisions. The decisions we make when stressed are often not the best decisions.

Some of the nastiest leaders in the world gain, and have gained, power because of the fear they instill. Is that what our leaders are doing now, or are they also being fed fear every day? I am not a conspiracy theorist. On the other hand, I do believe if you tell yourself something over and over again you begin to believe. After all, isn’t that what we are being taught to do to become more self-confident, to build self-esteem, and to make the most of ourselves? Darn right it is! And guess what – it works. So let’s use the same strategy to eliminate or reduce our fear now. You can stay in fear, or you can choose to live a beautiful life without ongoing fear.

It is a big ask for anyone who is afraid. Believe me, I have been there in the past. I am not there now and do not intend to be. I am in control of me, and I can help you be in control of you. Change is never easy, but small steps repeated over time accumulate and can make a huge difference. What is amazing is how the practices that can help get you out of a fearful state can be used every day, in a pandemic, or non-pandemic times.

At any time, each of us can benefit from someone who is a sounding board, or from a coach. Now, more than ever, someone to talk to is of the utmost importance. Many are experiencing feelings and fears they have never had to deal with before, and the people in their social support system are experiencing the same concerns. Find someone to talk to individually or as a group. I offer these kinds of services and I am sure there are others also offering individual and group coaching, mentoring, or training. As humans, we need each other. We are not meant to be alone. Seek what and who you need. You were not meant to live in fear.

Learn how to overcome anxiety, decrease your stress, and frustration. Book an appointment to chat at

Would You Like to Decrease Your Stress?

What a silly question. Doesn’t everyone want to decrease their stress? Of course, we all do. The hard thing for many of us is to figure out how. This past year, 2020, has only added stress for most people. Telling people to “not worry” doesn’t help one little bit.

I realized the other day that despite not having any reason to be feeling stressed – I was. Today I decided to take a day off. For me, that meant staying in bed for longer than usual, reading, playing a few games, fixing up some of my computer ‘stuff’, & at long last writing this blog. I had been putting it off because my blog site had disappeared – I made a mistake when I thought I was updating things. The other activities, or non-activities, of the day, have included a wee bit of tv, nothing that stretched my brain.

I know I need to practice what I preach. I also realized that a few months ago when I decided to make a few changes to my life I tried to do too much too quickly. I know better than that. But, I needed a reminder from my coach. I need to tackle one thing at a time. Right now I am taking a course – I need to focus on the course – it is short term & will be over in a few weeks. I have made a point of meditating every day. I have meditated for many years, but sometimes go for rather long stretches when I don’t (maybe a month). But, I am back at it – I feel so much better when I meditate at least once a day; why would I not do that every day?

https://unsplash.com/@keaneyefoto

The photo above appears to be a very stressed or sad person. I’ve been feeling like that the last few days – I want to curl up in a ball & ignore everyone & everything around me. Let’s make sure you don’t get to that stage. Regardless of the way I have been feeling I still want to help others. That might actually be a bit selfish – I feel better when I can help others. I don’t need to control, be in charge, or dominate. I want to help by listening, & sharing the strategies I have collected over the years (it’s been a lot of years), & guiding you to do what is best for you. Only you know what you are ready for & can do at this time.

How can I help? You might want to start with a Stress Check-List to see how much stress you are experiencing. I have included the Stress Check-List (from HeartMath) at the end of the blog. There are a plethora of ways to decrease stress. But, stress & decreasing stress aren’t one-size-fits-all. Some things are basics for everyone, but though we are all one, we are also unique & need what works for us as an individual. A few things to think about include: – sleep, healthy nutrition, exercise, meditation, yoga, a soak in a nice warm bath with Epsom salts & essential oils. Some of these are quick fixes, some are part of longer stress reduction & self-care strategies.

All of the above will help decrease stress, but you need to do them daily or frequently. I can help. As a coach/mentor I have many tools in my toolbox & I am sure we can find a few that will work for you.

Recently, I have successfully made it through cancer & chemo-therapy, coping with autoimmune disorders, retiring, & just getting old (yes, even aging can be a stressor).

Do you have too much stress?

Everyone responds to stress differently. Use this checklist to assess the impact stress is having
on your life and if it’s time to do something about it.

Low stress levels
 feel well
 I am able to relax
 Physical recreation brings me pleasure
 Increasing pressure enhances my performance
 My thinking is clear and I learn easily
 I am able to say “No”
 Others see me as adaptable and approachable

Moderate stress levels
 I feel driven, hyperactive, and restless
 I tend to make snap decisions but with errors
 I feel over-burdened but can still say “No”
 I often feel tired but am taking steps to recover
 I often try to squeeze a few extra drops out of my performance
 Discipline, fitness, social pressure and stimulants play a greater role in my ability to perform
 My sleep is just about adequate
 Others see me as tired yet successful


High stress levels
 I don’t think as clearly as I used to
 I feel irritable and “on edge”
 I complain and grumble regularly
 I work longer hours but get less done
 I have repeated minor ailments, aches and pains
 I am exhausted, have poor endurance and my work/life balance is suffering
 I am unable to distinguish the essential from non-essential
 I have sleep problems
 I feel like I’m l operating in survival mode
 I accept excessive burdens and see them as inevitable
 Others see me as energized and successful

Contact your HeartMath® Certified Coach for more information.

Elaine Rose

  • phone/text: 403-561-0185
  • email: fromtheheartwithdr.elaine@gmail.com
  • book an appointment: https://calendly.com/fromtheheartwithdr-elaine

© 2015 HeartMath LLC. HeartMath is a registered trademark of the Institute of HeartMath.

Changes – The Only Thing On Which We Can Rely

I have never been afraid of change. Everything is constantly changing. The world is experiencing huge change because the COVID-19 Pandemic is having an effect on everyone. It is just one of the changes I have experienced over the last seven years. Some of the changes have not been pleasant. However, I have learned a lot. Just as I expect to do in any experience.

I am a big supporter of self-care & have been for many years. I rudely discovered I wasn’t doing quite enough. I am a stubborn person & it took me quite a while to listen. If I had listened to my body a bit sooner maybe I wouldn’t have had seven years of health changes that were anything but pleasant.

In 2013 our home was flooded during the great flood of Calgary. Not good; but, I had been wanting to get rid of the carpet in the basement & make a few other changes. What an opportunity. About a week later that I found out why I had been so incredibly tired for the past year or two – I had an autoimmune disease. Changes.

I had always thought of self-care as going for a massage, a mani-pedi, or as simple as a nice soak in the tub. I also knew that self-care meant not taking on too much & being able to say “no”.

With the news of an autoimmune disease, I listened to my body & I slowed down. Not enough. I adapted, somewhat. I found not being able to do all I wanted very frustrating. I wasn’t able to work enough to keep my job. I retired, not what I wanted, but what I had to do. I hadn’t been without a job in about 40 years. But, I had lots of things to do, just not enough energy to do them all.

Still not feeling well my doctor was watching me & referring me to appropriate specialists. I had my gallbladder removed because of stones & nausea almost every day. The surgery went smooth & I was feeling great the next day & attended my granddaughter’s grade 12 grad just 3 days later.

A week later, things changed. I awoke in great pain. Back to the hospital for a week’s stay, I had pancreatitis. I took the entire summer to recover. A great change to how I would normally spend the summer.

I never got back to feeling well, but I kept plugging along doing what I could to regain strength & endurance. Various symptoms continued to develop. Tests & referrals to a variety of doctors. Eventually, it was noted that my spleen was getting quite large (I hadn’t been able to eat much for several months & my weight was dropping. I was very happy to lose the weight, I needed to drop many pounds. The doctors weren’t quite so happy. Surgery was in order to remove the spleen. I think that went as well as could be expected. The spleen was cancerous, as the doctors had suspected. With my spleen removed I was considered in remission, I would only need to be followed by the cancer clinic. I could handle that. Again doing well recovering from the surgery. Having surgeries was a big change for me & I was pretty happy with both. As a retired ICU nurse, I was very aware of many things that could go wrong.

About a month after the splenectomy, I started to not feel well again. Another change that I wasn’t too happy about. More tests. Off to the hospital again. I wasn’t feeling too bad, & was surprised that the hospital kept me. A couple of days later that changed. I thought I was going to die & the doctors couldn’t figure out what was wrong. A different cancer this time. I was thrilled that it was just cancer & could be treated with chemotherapy & was expected to have a full recovery.

The chemotherapy routine was different – another change. My husband was a marvelous caregiver; I will be forever grateful to him. I finished chemotherapy in February 2020. COVID hit & within a month we were in lockdown. However, that wasn’t a big change for me; I had been very careful since my spleen was removed because no spleen decreases your resistance to infection.

What changes have occurred since then? Well, nothing very major. Another autoimmune disorder, but not much different than what I already had.

Changes

Elaine
Before Chemo
During Chemo

Every day we undergo changes we don’t notice. In one day 2 to 3 million red blood cells are produced. As cells are produced others are dying. As many as 1011 cells die each day in adults. These are only some of our cells. Different cells live for various amounts of time. Just as we cannot step in the same river twice, we are a different person every day with many new cells. Change in you, in me, every day: wow!

When faced with change I suggest looking at what you can learn. Discover how change can be of benefit, or provide the source for an adventure. Whether it is health, how you are functioning in this world, or discovering more about yourself you have a choice to embrace change & make sure you emerge a better person OR you can choose to let the change control you.

I am working to build my coaching/mentoring business. As I do this work, I realize I have lots to learn, not the least is more about technology. I am much more aware of the positive changes we can make. Sometimes we need to make changes so we can manage the changes we have accepted in the past. I love helping people discover the wonderful things they can do with just a bit of discovery & guidance.

What changes would you like to make? Oh my gosh, we can actually choose to make changes. Where do you want to be in 5 years? Will you need to make some changes to get there? Will there also be changes that ‘just happen’?

Book a time in my calendar to schedule a free chat to uncover your strengths & move forward to make your dreams come true.